2018 appears to be the year of growth change and acknowledgment. The year has offered unimaginable highs of experiences and a number of discomforts.
Malcolm and Goliath
I had a profound conversation with a supervisor about the Goliath that MS is. I described it’s ability to make me immobile, incapable of maintaining my balance, fall over my own feet, the indescribable fatigue and the effects of the dreaded brain fog and non-acceptance of the illness. As an African Caribbean man the illness presents as a continuing battle of identity.
Here I would like to highlight that Malcolm Gladwell has forever changed my perspective on the story of David and Goliath. David a trained marksman and Goliath a lumbering short sighted oaf who simply was nimbly struck down by a swift footed and clever assassin. For the purpose of the blog I’ll stick to the original telling of the story.
MS I shared is like a Gargantuan beast of a disease that strikes at will and takes no prisoners. It is merciless and has no rules of engagement. It strikes and I succumb to it’s malware like intentions like an affected computer system.
The Great White
I was invited to think of MS as a great white shark during the conversation. One can be swimming away in reasonably deep water blissfully oblivious. Under the surface of the water and at a time when one least expects it a crushing bite can unsuspectingly ruin that hard won peace. The shark attack bites and bites hard. There is seldom chance of escape, or hope of appeasement. There simply is the possibility of relapse and further degeneration as the disease kicks into a more progressive form. MS has no known cures. Rest, diet and a host of vitamins including vitamin D, B complex’s, C and A can have a supportive impact. I am currently trialing CBD oil and will write a more informed blog about it’s use.
Walking a Line
The conversation with the supervisor was unique as they have suffered with the illness for almost twice as long as I, and recognise the disastrous impact it has on mood, diet, energy levels, travel, work, friendships, career options and overall well-being. This was the first conversation I have had with a veteran of the disease. I have another friend that I haphazardly talked with about the disease, but they recently moved to New York city. There is something welcoming and nurturing about finding others who are walking a line that looks and feels like the one you are walking.
A New Story
The summary of the conversation with the supervisor was that when all seemed to be going well with my career a blow by the hand of fate has paused my star’s ascent. In a moment that feels both gruesome unkind and resentful my body is attacking itself – unwittingly I am destroying me.
No Running Away From
In That Thing You Seek I sarcastically noted of the gift of MS. I have wanted to kick it’s ass and prove to myself and it that I am not to be cowed by it, deflated by it, undone by it, denied by it. I have lost the ability to run (I used to love to run), have boundless energy, lost my sense of balance, have leg cramps and back spasms, lose my train of thought mid speech: mid-sentence, lose myself to a foggy mind, make miss steps trip and fall, no more shimmy shimmy ya on a Bball court with my sons or with my old Gladiators or Hurricanes basketball teams I once coached.
The Sharp End
Now I realise that this is a war of attrition. The numerous days ahead will be hard won battles just to make the what was a ten-minute walk home now a 15-20 minute one from my local train station. It’s the unseen losses and defeats that I feel will cause the most pain. Turning my imagination over to that uncertainty of a whirling dervish is a torture at this point I will not spend much time with.
For me now it’s a case of joining the MS society, locating a mental health professional to discuss the impact on my self-aspect, accessing the support a great many have offered (I have been too stubborn and too proud in accepting) and begin re-modelling for another type of future.
The last words from my supervisor are that of “I don’t think I do accept this MS stuff actually. Rather, on reflection, I think I treat it like that old adage of keep your friends close and your enemies closer still.”
For me it is a recognition that MS has me and I, like a shark bite, have it!